Showing posts with label Chronically Ill Tuesday. Show all posts
Showing posts with label Chronically Ill Tuesday. Show all posts

Sunday, 24 June 2012

Chronically Ill Tuesday.


Welcome to the first ever Chronically Ill Tuesday post - a regular space for me to share some of the fun that is chronic illness with my reader/s. Thought I'd begin on a light note with a letter I wrote  to my immunologist after a recent visit.


Dear Dr C.
Trot off today to hospital immunology ward for my regular appointment with you.  Love these visits. Can't tell you how much. Begin as always by getting lost in corridors of hospital, a fun labyrinth layout that has brazenly done away with windows, leaving self to reflect once again on architect of building's character. Wondering for example what force of creativity/mental illness could possibly explain such a layout. Chide self though. Possibly being unfair to architect. Building probably just designed to specifications. Those specifications being "Re-imagine hell then suck all oxygen out of it".
Finally arrive at hell's transit wing - the Immunology/radiology/chemotherapy waiting room. Have to say, enjoy the hour long wait. 
Finally our moment. Have been waiting two months to see if immune system has built antibodies to pneumococcal vaccine challenge.
Discover, unsurprisingly, immune system mounted no challenge. This meets protocol to enter the Intragram trial. But no, you've thought up further diagnostic criterea/circus hoops to put me through! Goodness no, these are not tears of frustration. They are tears of joy at the thought of more tests - who doesn't enjoy a god forsaken process?
"Your condition is not life threatening Mia"
"Correct Dr C. That is why have had it for 25 years now"
"And as we've discussed, Intragram is liquid gold. A very scarce resource. We need to be sure you are a good candidate for the trial".
So understand Dr C. And don't mind me. I'm just enjoying our time consuming, fruitless visits. Plus did I mention how much I like your registrar? I love that he is so young, so fresh out of Med school, seems to have had absolutely no life experience and exhibits zero interpersonal skills. I particularly enjoy sharing my difficult medical history in his compassionless, robotic company and then hearing him repeat it back to you in diluted terms. And by all means when you need to discuss me with him, pretend I'm not in the room the whole time. That's ace. Oh, and if you could possibly arrange it? A painful diagnostic procedure in view of thirty first year med students.
Till next time,
Yours, 
Mia.
P.S Why are the magazines in the waiting room so old? Don't you understand that Nicole Ritchie and Joel Madden  have stopped dating and have two children already??????

Well, that's it for this weeks Chronically Ill Tuesday. I hope you enjoyed it!

Wednesday, 13 June 2012

What Kind Of Blog?

Been blogging for a month or so now and while am enjoying it greatly will admit to struggling as to where blog fits in vis a vis bloggingsphere. For example am I a crafting/design blog (see tutorial)? Or am I a leading independent voice in the online blogging fashion community (see photo of shoes)? A go-to site for inspirational parenting maybe (see post)? Or a Home Styling/Pets Enthusiast blog? Then again who is to say I can't be all? One line of interest I'd like to develop further in this blog is chronic illness. I've always had bit of an eye for the zietgest and honestly I really feel chronic illness is on the verge of trending any time now and thus could really position myself as someone with voice of substance. Having said that I wouldn't want to back this blog into a chronic illness niche per se. And in fact don't want to attract too many followers with actual chronic illness. Sick people are kind of depressing don't you think? I wish they would wash their hair more.
Anyway, in anticipation of the trending wave for chronic illness blogs that (in my opinion) is gathering pace right now as I type, I've had this really great regular feature post idea which I'm thinking of calling Chronically Ill Tuesdays. Sort of in manner of Etsy Friday or Thrifting Thursday. Where  every Tuesday I would share some stuff about chronic illness you might enjoy. Be it a helpful tip regarding a prying pharmacist or how you can take the pyjamas/dressing gown combo from day to night and back to day again. Of course the idea is still in it's infant stages. Like might do it on a Monday instead. Then I'd call it Chronically ill Monday.